Rebecca Share-Howard
You deserve to be heard
Independent, board-certified patient advocate — and someone who has sat on your side of the exam table for most of her life.
My story is why I do this work
Chronic pain entered my life as a child and never fully left. I know what it costs to be told your case is "too complex," to repeat your story again and again just to be believed, and to watch critical details fall between specialists who never compare notes.
I also know what changes when someone finally listens. That's where I start with every client: belief. Your experience is real, and it deserves to be taken at face value — then examined as a whole picture, not a stack of disconnected parts.
Before founding Whole Story Advocacy, I spent years in hands-on clinical work as a patient care coordinator for the chief of clinical gastroenterology at a major hospital, and years more informally advocating for people navigating impossible situations. Becoming a Board Certified Patient Advocate made official what had already become who I am.
“Because I've been the patient labeled 'too complex,' I refuse to let a client's case get written off that way. I know when and how to push for the next test, the next specialist — even when a provider is ready to stop the search.”— Rebecca Share-Howard, BCPA
What stands behind the work
- Board Certified Patient Advocate (BCPA) — the profession's board credential, with ongoing education and a binding code of ethics
- Years of clinical patient-care coordination at a major hospital
- A lifetime of lived experience with chronic pain and complex, multi-system illness
- Practice focus: chronic pain — diagnosed, undiagnosed, and everything in between
Independence, in plain terms
I am hired directly by patients and families — never by hospitals, insurers, or providers. I don't accept referral fees or compensation for steering clients anywhere. Every recommendation is based on your goals, your circumstances, and your informed choice.
Where my role ends
I provide non-clinical advocacy, navigation, research support, and care coordination. I don't diagnose, prescribe, or make treatment decisions. You remain the decision-maker, and clinical questions belong with your licensed treating professionals.
Relentless about details, humane about the cost
I read every chart, track every medication, and listen closely to what's said — and what isn't — in provider visits. Fragmented care taught me the hard way to be the person who looks at the whole picture and pays attention to all the details.
And because I know what this journey takes out of you, the work stays humane: plain language, honest uncertainty, and hope that's earned — grounded in evidence, community, or a practical next step. Never offered as a substitute for being heard.
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